Madilynn’s been trying to take little independent steps here and there around our house, and every single one of them feels like a victory, like something we’ve thought about but didn’t think of our reality 🙌 They aren’t big or fast, and they don’t always look great (hence why I moved her back to the start 😆) but they’re hers. Some days she surprises herself with how far she can go, and other days she’s mad her body can’t do more. I stand close, not to rush her or take over, but to remind her
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Madilynn’s been trying to take little independent steps here and there …
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Climbing takes her time, focus, and a lot of determination. And it also takes patience from the world around her. When kids are given the space to move at their own pace, something really special happens: understanding grows, empathy grows, and inclusion becomes natural. Thank you to the parents who teach their children to wait, to notice, and to cheer instead of rush. Those small lessons make spaces like playgrounds safer and kinder for everyone 💛 #sca5 #ataxiaawareness #disabilitypride #inclu
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Climbing takes her time, focus, and a lot of determination. And it also t…
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Part 2 of the Epic Battle of the Super Suit✨This time, she was staying strong on her opinions and not having ANY of my reasoning. Just a very strong, very loud “no” on repeat 🫠 Because the truth is, we do ask more of her than most kids. She has to make decisions about her body that other children her age don’t even have to think about. And honestly… that’s not fair. But two things can be true at the same time…she can be tired of it, frustrated by it, and still be one of the strongest kids I kno
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Part 2 of the Epic Battle of the Super Suit✨This time, she was staying s…
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Throwback to Madilynn’s first day of school at her new school. New places are often scary for her, but more so for us as parents. Letting go, allowing others to care for her, and trusting that we have given her loud enough of a voice to stand up for herself are all things we’ve had to do when we moved across state lines to a community that we knew no one in. Connor missed her so much and COULD NOT WAIT to see his best friend. Although they fight like cats and dogs some times, they truly are the
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Throwback to Madilynn’s first day of school at her new school. New pla…
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Finding our tribe one day at a time 🫶 #inclusionmatters #sca5 #cerebralpalsy #disabilitypride #findyourtribelovethemhard❤️ | Mightymadilynn
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Finding our tribe one day at a time 🫶 #inclusionmatters #sca5 #cerebral…
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Rumi and her best friend the truck driver ❤️🎃 Please excuse my never ending mom commentary 😂 Grateful for this community that gives opportunities for all kids to be seen and heard. We couldn’t love our school more!!! #happyhalloween #kpopdemonhunters #rumicostume #halloween2025 #disabilitypride #sca5 #inclusionmatters | Mightymadilynn
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Rumi and her best friend the truck driver ❤️🎃 Please excuse my neve…
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Just another manic Monday 🎶 As with any family, every morning that we have to get up and go are busy from wake up to drop off, but with Madilynn having SCA5, we need a little bit of extra attention and love in the mornings. She needs assistance with a lot of her morning routine, and as her parents, we happily help her as much as she needs. But as she gets older, we wonder what that is going to look like. Spinocerebellar Ataxia is a rare and debilitating neurological disease caused by damage to
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Just another manic Monday 🎶 As with any family, every morning that we …
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Inclusion doesn’t have to be complicated. It doesn’t need speci…
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Found this video from last month where Madilynn is taking small bu…
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Super Suit Bathroom chats, part 1 💕 Today we’re talking about her DM…
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Happy Valentine’s Day to all who celebrate! Happy February 14th to …
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搭建节点 sk5教程
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[ ©; Shantal ] low Quality ba?😓 #fypシ #minjinewjeans #attractive #conte…
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