I was excited thinking we were about to have our first seizure free day in months. 13 minutes later, she had a really bad seizure. It really knocked her out and now she is sleeping. Maybe tomorrow we will have a seizure free day. 🤞💗My poor sweet girl. #epilepsy #epilepsywarrior #tuberoussclerosis #epilepsyawareness #baby
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Ember was such a happy girl tonight. I could watch her play for hours. #baby #babygirl #play #happy #epilepsywarrior
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These are infantile spasms caused by Tuberous Sclerosis Complex (TSC). They don’t always look like what people expect seizures to look like. Videos like this helped us get answers — so I’m sharing in case it helps another parent trust their gut. #InfantileSpasms #TSC #SeizureAwareness #RareDiseaseAwareness
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