For columnist Betty Vertin's 19-year-old son, Chance, becoming a caregiver to his brothers has benefited the entire family.

Two interconnected themes — community and hope — dominated conversations at this year's MDA Engage symposium in Dallas.

Choosing assistive equipment for a neuromuscular disease patient starts with understanding goals, environment, and needs, ...

Struggling with increasing leg weakness due to FSHD progression, columnist Robin Stemple turned to what he calls the "knee ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Advocacy doesn’t come naturally to everyone. Often, you learn to ...

A new gene therapy approach safely restored the production of emerin, the protein missing in people with X-linked Emery-Dreifuss muscular dystrophy (EDMD), in both a mouse model and human muscle cells ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last Friday, my girlfriend, Amanda Yip, and I celebrated the ...

Roughly four decades into living with limb-girdle muscular dystrophy, I’ve developed numerous ways to thrive. Like many others, I believe in the power of a positive attitude. I try my best to project ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google One problem dealing with a progressive disease like ...

On May 1, my daughter Jill graduated from the University of Pittsburgh with a master’s degree in public policy and management. She also received the department’s student achievement award and was the ...