Columnist Jennifer Lynne believed she was the first in her family with hemophilia, until she learned she was just the first with a diagnosis.

Columnist G Shellye Horowitz reminds herself to learn to pause and remember when her hemophilia treatment journey did not ...

Inno8, an antibody fragment for oral administration, may be a preventive treatment for hemophilia A, according to preclinical ...

Before medical procedures, columnist Jennifer Lynne always asks her hematologist about pretreatment, even if a doctor's advice is different.

Columnist Joe MacDonald is proud to see his adult sons self-advocate using lessons they learned from their parents growing up.

Columnist Allyx Formalejo and her husband are concerned about their daughter developing anxiety about risks she learned from ...

Despite progress in identifying hemophilia B, gaps in diagnosis and treatment persist across the eastern Mediterranean, a ...

Blood tests may give different factor VIII activity results with Altuvoct, a study finds, especially at low levels and later ...

Columnist Joe MacDonald at first saw his son's wheelchair as a limitation, but realized it gave Caeleb the freedom to live ...

Columnist G Shellye Horowitz's fashion piece, IV Couture, which was made from medical waste, is a 2026 RARE Artist finalist.

Document what doesn’t work, and then take that information to your treater so that they understand your bleeding story. It is so important for them to understand the way you bleed and how you bleed, ...

You have to be ready for it. Because at the end of the day, like, it is your care that you are ultimately in charge of it. And if something isn’t working, you are not out of step for saying something ...