Columnist Jennifer Lynne believed she was the first in her family with hemophilia, until she learned she was just the first with a diagnosis.

Columnist G Shellye Horowitz reminds herself to learn to pause and remember when her hemophilia treatment journey did not ...

Columnist G Shellye Horowitz's fashion piece, IV Couture, which was made from medical waste, is a 2026 RARE Artist finalist.

Before medical procedures, columnist Jennifer Lynne always asks her hematologist about pretreatment, even if a doctor's advice is different.

Inno8, an antibody fragment for oral administration, may be a preventive treatment for hemophilia A, according to preclinical ...

Columnist Allyx Formalejo and her husband are concerned about their daughter developing anxiety about risks she learned from ...

Despite progress in identifying hemophilia B, gaps in diagnosis and treatment persist across the eastern Mediterranean, a ...

Columnist Joe MacDonald at first saw his son's wheelchair as a limitation, but realized it gave Caeleb the freedom to live ...

Blood tests may give different factor VIII activity results with Altuvoct, a study finds, especially at low levels and later ...

Columnist Joe MacDonald is proud to see his adult sons self-advocate using lessons they learned from their parents growing up.

My son Caeleb recently had his wisdom teeth removed. Caeleb has severe hemophilia A with an inhibitor, but hemophilia hasn’t been the main focus in his life for years. Nevertheless, before the surgery ...

I’m living in New York City. I got my first real job and everything is going great. I sliced my finger accidentally. I was trying to prepare dinner, and I just major slice and I go to the ER, and this ...