For more information on porphyria, contact the American Porphyria Foundation at www.porphyria foundation.com or at 1-866-APF-3635. Imagine having a rare and sometimes fatal disease that causes ...
Mischa Keeling has since childhood dealt with an inherited blood disorder some call the vampire disease or King George’s madness. The Spokane Valley resident finally received a diagnosis about five ...
SEATTLE, April 01, 2021, (PHARMIWEB) — Porphyria is an inherited rare disorder that affects the nervous system or skin and may cause abdominal pain. Cells of porphyria patients are unable to change ...
Centuries ago, physicians began documenting people coming down with a mystery illness that tainted their urine with a reddish hue, cursed them with extreme sensitivity to the sun and transformed their ...
RNA interference (RNAi) specialist Alnylam has hit the accelerator on its candidate drug for ultrarare porphyria diseases, prepping for phase 3 trials later this year after unveiling initial results ...
Buhler resident Shirley Schrag said it was hard for physicians to diagnose the cause of her pain because the disease is rare. Acute intermittent porphyria is inherited, and those who have the painful ...
If you've spent the last week binging "Queen Charlotte: A Bridgerton Story" you're likely well-versed in the complicated (and steamy!) love between Queen Charlotte and King George III. But this high ...
Acute intermittent porphyria (AIP) is an inherited condition that causes a mutation in the gene that produces the oxygen-carrying compound haem in red blood cells. The mutation alone does not trigger ...
Tami Varma, right, and her brother Robin, the grandchildren of Devendra Varma — a scholar of English gothic tales and an expert in vampire lore — pose in coffins at the Bran Castle in Bran, Romania, ...
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