I went to A&E after series of panic attacks when 12 — now I’m fighting one-in-200 disease that’s taking over my body

AOIFE Gavan was just 11 when climbing stairs and walking started to become difficult — two years later, she was told she had ...

I won genetic lottery nobody wants, my body is failing me — there’s no cure and now Government has lives in its hands

A WOMAN with a rare degenerative disease has blasted the Government after patients were left waiting 677 days for access to a ...
News Medical

Gyroscopic backpack improves balance in patients with ataxia

An innovative backpack, incorporating aerospace technology, shows promise as a balance aid for patients with the movement disorder ataxia. Research conducted by Radboud university medical center, in ...
RTÉ Ireland

Martin wants quick decision on Friedreich's Ataxia drug

Taoiseach Micheál Martin has said he wants to see patients living with Friedreich's Ataxia in Ireland have access to the ...
RTÉ Ireland

Father of rare disease patient fears losing second son

Patients with rare diseases and their families travelled to Leinster House to call for action on access to new medicines.
Healio

FDA approves first oral treatment for Friedreich’s ataxia

Please provide your email address to receive an email when new articles are posted on . The FDA has approved Skyclarys, Reata Pharmaceuticals’ oral, once-daily medication to treat Friedreich’s ataxia ...

New Progress Toward Public Reimbursement of SKYCLARYS™ for People Living with Friedreich Ataxia in Quebec

CNW/ - Biogen Canada Inc. is pleased to announce a positive outcome from the Institut national d'excellence en santé et en ...